It was a very educational visit at the spine center last week! For those who are interested, this post is the recap of my appointment and new plan of action.
First thing they wanted to do was get a new, updated x-ray. The last time a doctor has looked at my scoliosis was probably my senior year of high school, which was.... cough cough... 18 years ago! (Oh my gosh, it actually HURTS to say that.) In the past, I remember my curve was always measured at about 37 degrees. I always remembered this number because you become a surgical candidate at 40-45 degrees, or so I was told back then. I got very close, but the AWFUL back brace that I wore through high school did the trick and halted my curve from getting any worse, and I was able to avoid surgery. Here is the new x-ray that they just took of me after 18 years:
Don't know if you can see that small measurement written on there of 35.4 degrees. He chalked up the difference as typical human error... it's normal to expect a degree or two difference between the doctors who look at your pictures. To quote, the doctor was "shocked" that my curve had not progressed in all that time. Apparently, it is typical to expect about 5 degrees of worsening for a person my age. (So YAY! That was some good news.) I was still not a candidate in desperate need of heading straight to surgery.
The bad news is, my curve WILL likely progress as I age further. So the surgery is inevitable. For now, I get to try to "manage my pain" (yipee, doesn't that sound great?) The game plan is to start with the least invasive methods first, then build from there. That way when you have to operate, at least you can say you tried everything else! So I am starting with step 1: a prescription strength anti-inflammatory and yoga 3x a week. The doctor specifically told me YOGA. Today I'm on 5 days of my pills, and exercised twice. All I can report so far is WOW I'm very sore!!! I've never been a regular exerciser... ever. I am a certified wimp!
One last thing I learned about was the source of my pain. Just to be clear, it is not a joint pain, not related to a disc in between the joints, a nerve, or even an injury. It does not bother me to move, bend, or lift. I do not have arthritis - none of the "parts" are damaged. My pain comes from the surrounding muscles that hold me up. You may not realize it, but your torso is "working" just to be upright when you stand and sit. It's not a difficult task, so you can do it very easily. Since MY muscles down by that curve are all in twisted, weird, not-normal positions, they have a harder time performing that simple task. (Making it worse is the fact that they are especially weak from wearing the back brace for 3 years, coupled by my inactive lifestyle ever since then!)
The doctor compared it to holding a bucket of water. If I handed you a bucket of water and asked you to hold it with your arm straight down by your side, you could probably hold it for a long time before that arm tired out. That's a pretty natural position for your arm that requires only a little work. Now, if I gave you the bucket and asked you to hold it with your arm extended out (like you were pretending to be an airplane) then think of how long you could go before that arm got tired. It has to work a lot harder! And after a short time, your muscles will be a'hurting. That is what is being asked of my muscles nearly every minute of the day. They must perform a simple task, but from a not-so-normal position which makes it instantly become a very difficult task instead! Therefore, instant fatigue and pain. That was a great comparison and seemed to describe me perfectly!
Overall, I'm happy that I don't have to get my spine fused and metal rods screwed in there. (He said this operation should expect a 3 month recovery!!!) That hardly sounds fun OR convenient for the mother of a young family to be incapacitated that long. I do need to count my blessings for the present time. BUT, I'm discouraged to think that this pain is going to be around for a long, long time to some degree. I'm going to do my best to strengthen and help it, but really, the source of the problem is always there. I'm tired of how it limits me. I want to take my kids to Disneyland and be able to walk through the park all day. I want to go on hikes in the mountains. I want to shop the streets of NYC (or shop anywhere!) for hours at a time. I want to be able to sit through a movie, or 3 hours of church without slumping or changing positions a couple dozen times. I want to stand at my counter and cook dinner at the end of the day, or work on a sewing project without taking breaks to wipe my eyes. Hopefully all of these things can be in my future once again... someday soon!?
9 comments:
Wow! That spine is crazy. By the way you move about, I never would have guessed you have scoliosis. You are good at pretending you're not in constant pain. :) I hope the Yoga helps. I think that's interesting the doctor told you to do that. Some people think it's amazing, so maybe it will be miraculous for you, eh? Oh, and you should take your kids to Disneyland. Between Jason and Mitchell, they can push YOU around in the stroller. :)
Although mine is up in my neck instead of my lower back, which affects my shoulders and head more than my posture and weightbearing, I relate to everything you just posted. The muscle spasms are terrible and very few people realize how difficult it is to live with. I've done physical therapy, stretching, massage, exercise, Rx anti-inflammatories, and a TENS unit for a couple of years... and "managing" is about how I'd describe it. :\ But it does help a little -- at least ebbing and flowing bad days with good days. Strengthen and stretch those muscles and it will help! Wish you luck!
Tha is the craziest curvature ever! wow!!! May your pain management be successful...
Your poor body has sure gone through a lot, hasn't it!
Let's go to a yoga class together!!!
I honestly didn't know it was so bad! I didn't realize it was an every-day kind of thing. I feel like dull, chronic pain is always worse than acute, sporadic pain. I hope the yoga helps--I've always loved yoga and it makes me feel strong. I also think it brings peace of mind to be able to say you're trying everything you can, and to try to let the rest go. You can do it! :)
Oh boy, I'm so sorry you have to deal with that. You are one tough cookie.
So the other day when we were talking you said I do exciting things and you guys are boring...WHATEVER Miss, I sew a million things, throw super cool Harry potter birthdays and make chess sets mama! You are way cooler and more fun that me. I bribed my own son not to have a birthday party with a DS. Now after seeing Mitchelle's party I'm feeling kinda bad.
I know I already commented of FB, but you are one tough woman! You know I have scoliosis too and I have REALLY bad neck problems which I associate with my scoliosis and mine is very mild, so I can't imagine what yours feels like. You are a superwoman and supermom. Wow. I sure hope Yoga will improve the pain! Even if just a little bit!
Seriously Amy, that is so crazy!! I cannot believe all that you CAN do with a spine like that. You are amazing!!
That x-ray is nuts! I can't imagine your pain, though you gave quite a good analogy, and I'm so very impressed by you!! Hopefully the simple stuff makes a dent in that pain for you. Good luck on continuing the mundane without pain!
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